Voor het Angelman Syndroom

Angelman Syndrome Alliance

DO more with Research Grants and Research DevelopmentlogoASA

By combining financial resources we can fund research that individually our organisations could not.

The Angelman Syndrome Alliance (ASA) is a partnership of organizations from around the world that are focused on supporting people with Angelman Syndrome, their loved ones, carers and clinicians. By combining resources, knowledge and a relentless dedication to initiate change, the ASA is uniquely positioned to drive advances in scientific knowledge about Angelman Syndrome. As a rare disease, funding for scientific research from major funders is limited. The ASA is breaking new ground, utilizing limited resources from around the globe in a smarter manner.

Strategy and Policy What can YOU do? First Grants 2014

Angelman Syndrome needs answers

The current worldwide crisis in healthcare calls for changes that challenge the fundamental dynamics of our organisations: to reduce spending while maintaining quality and searching for therapies for Angelman Syndrome.

Together and individually all partner organisations and their members (predominantly parents and siblings of people with Angelman syndrome) have played a key role in transforming knowledge about AS over the past 5 decades. There have already been major breakthroughs in our understanding of AS, and advancements in the past few years have enabled us to believe that a treatment is within our reach that could significantly improve the lives of individuals with AS.


Identifying and developing treatments for Angelman Syndrome

Together we identify research that challenges our knowledge of AS today, to enable us to develop solutions for future therapies. ASA has a Scientific Board, a group of volunteer scientists, who advise us and support our goals. The alliance focuses its investments on innovative science, with our ultimate goal to find therapies for patients with Angelman Syndrome.


A formidable combination of resources

Our mission is to grow and support scientific knowledge about AS that can create fundamental and lasting changes in therapy for patients with Angelman Syndrome; so that parents, therapists and clinicians can improve the quality of life of those with AS.